Lexi Robins A five-month-old from the UK is “turning to stone” due to an extremely rare genetic condition that turns muscles and connective tissue into bone. Born on January 31, 2021, Lexi Robins’ life has been pretty rough thus far, to say the least
Lexi Robins Biography
Lexi Robins was born on January 31, 2021, to Alex and Dave Robins. She has an older brother, Ronnie, who is 3 years old. Lexi Robins suffers from a rare genetic condition called Fibrodysplasia Ossificans Progressiva (FOP), which can lead to bone formation outside the skeleton and restrict movement; It is reported that the disease is often compared to the body turning to stone.
For a time since her birth, Alex and Dave weren’t sure what was going on with her newborn daughter until they decided to take her to the doctor. It was a while before Lexi was diagnosed with a life-limiting disease called Fibrodysplasia Ossificans Progressiva (FOP), which affects only one in two million. Exactly because of her rarity, it took a while for doctors to diagnose her.
Lexi Robins Age
Lexi Robins was born on January 31, 2021, to Alex and Dave Robins. Lexi Robins is 5 months old.
Lexi Robins Parents
Lexi Robins was born to Alex and Dave Robins.
Lexi Robins Siblings
Lexi Robins She has a more established siblings, has an older brother, Ronnie, who is 3 years old.
Lexi Robins Health Condition
A five-month-old from the UK is “going to stone” because of an amazingly uncommon hereditary condition that transforms muscles and connective tissue into bone. Born on January 31, 2021, Lexi Robins’ life has been quite unpleasant up to this point, most definitely.
At the hour of her introduction to the world, she appeared as though an ordinary child, then again, actually she didn’t move her thumb and had bigger toes.
Her folks Alex and Dave from Hemel Hempstead were apparently informed that her little girl has a day to day existence restricting sickness called Fibrodysplasia Ossificans Progressiva (FOP). The perilous condition influences just one of every 2,000,000.
As indicated by the most recent reports, Robins’ April X-beams uncovered that she had twofold jointed bunions on her feet and thumbs. Not long after Lexi was brought into the world on January 31, Alex and Dave saw that her enormous toes didn’t look great and there was little development in her thumbs.
“At first we were informed that after the X-beams, she likely had a disorder and would not walk,” said Alex, 29.
“We simply didn’t accept that since she is extremely solid actually the present moment and is simply kicking her legs. We weren’t exceptionally certain so we did our own exploration in mid-May and afterward we discovered this illness and took her to the expert medical clinic.”
“Towards the finish of May we needed to do a hereditary test, more X-beams, however the hereditary test requires a month and a half to get the outcomes,” she said. Lexi’s tests were then shipped off a particular lab in Los Angeles, where they affirmed that she had tried positive for FOP.
“Then, at that point we really discovered last Monday (June 14) the aftereffect of the FOP test,” Alex proceeded. “The quality they are searching for is the ACR1 quality and, shockingly, it is the quality that she has.”
As per the most recent reports, FOP can prompt bone development outside the skeleton and confine development. It is accepted to supplant muscles and connective tissues, like ligaments and tendons, with bone. Individuals with this illness, which has no demonstrated treatment, can be incapacitated by the age of 20 and their future is around 40 years.
Because of the problem, Lexi’s condition can immediately decline in the event that she endures some minor injury, in any event, something as basic as a fall. She additionally can’t get infusions, immunizations or dental consideration and can’t conceive an offspring.
“We are under the aptitude of a first rate pediatrician in the UK,” added Dave, 38, adding, “and said that in his 30-year vocation he had never seen a case like this present, that is the means by which uncommon it is. Alex, Lexi’s mom, added:
“She is totally splendid. She stays asleep from sundown to sunset, grins and chuckles continually, she scarcely at any point cries. This is the way we need to hold her back.”